During winter I do not like to take florinef even though I have adrenal insufficiency and low normal aldosterone levels. It seems I can keep myself balanced with diet alone and the salt-wasting is not too bad. However in the summer, I have to take florinef or my BP will go too low. This is where my adrenal insuffiency and POTS seem to mix a lot. The line between them is very vague here because lots of POTsies take florinef with great success. I wish I could say it's amazing me for, but it is not. Many people with Addison's or Adrenal insufficiency have great success with florinef too. I really do not see the huge improvements most seem to have with it. I wish!
Showing posts with label medications. Show all posts
Showing posts with label medications. Show all posts
Friday, March 11, 2011
Wednesday, February 23, 2011
Why I'm So Bitter
Over the years I've had a few people ask me an interesting question... Why am I so bitter? The answer to that is simple, I'm not feeling better.
After more than 10 years of bouncing around from doctor to doctor, being completely ignored or accused of using heroin or some other illegal substance, you start to become disenchanted with mainstream doctors. I've been to various different types of doctors and none of them have any solutions to my issues. When one of the "trusted" drugs or supplements fail to give you the expected improvement, then they literally throw their hands up in the air and give up.
Are the doctors I see just bad doctors? I wish I knew the answer to that, but regardless POTS
patients are suffering. We suffer on a daily basis and cannot resume normal activities even while on 10 medications and following their salt and water intake suggestions as well as wearing uncomfortable compression hose and raising the head of our bed. Just typing all of that out makes me even more angry. Something is wrong here. These doctors should realize what they are doing is not working. Whatever theory you have used to trial these meds in POTS patients has not panned out and it's time to get back to the drawing board. PERIOD!
POTS doctors are only treating symptoms and in my case have no desire to figure out the underlying causes. In most cases, they are incapable of even controlling symptoms, so they are failing at all aspects of their job. There are always breakthrough symptoms in every single person I have spoken to over the years with POTS. You might see a slight improvement with standing HR numbers, but you still classify with POTS and still cannot lead a normal life. What else truly matters in life?
Once you start mixing medications, it becomes damn near impossible to know what side effects are from what drug. How do you know what is a "POTS" symptom and not a side effect from the new beta blocker you started taking or the new SSRI you have been put on?
It gets to a point where enough is enough and that is why I am bitter. I am sick of POTS doctors treating POTSy like guinea pigs. I did not sign up for this! There has to be others out there that feel the same way as me. Surely not all of you are brainwashed that we need all of these medications especially when they are NOT working?
After more than 10 years of bouncing around from doctor to doctor, being completely ignored or accused of using heroin or some other illegal substance, you start to become disenchanted with mainstream doctors. I've been to various different types of doctors and none of them have any solutions to my issues. When one of the "trusted" drugs or supplements fail to give you the expected improvement, then they literally throw their hands up in the air and give up.
Are the doctors I see just bad doctors? I wish I knew the answer to that, but regardless POTS
patients are suffering. We suffer on a daily basis and cannot resume normal activities even while on 10 medications and following their salt and water intake suggestions as well as wearing uncomfortable compression hose and raising the head of our bed. Just typing all of that out makes me even more angry. Something is wrong here. These doctors should realize what they are doing is not working. Whatever theory you have used to trial these meds in POTS patients has not panned out and it's time to get back to the drawing board. PERIOD!POTS doctors are only treating symptoms and in my case have no desire to figure out the underlying causes. In most cases, they are incapable of even controlling symptoms, so they are failing at all aspects of their job. There are always breakthrough symptoms in every single person I have spoken to over the years with POTS. You might see a slight improvement with standing HR numbers, but you still classify with POTS and still cannot lead a normal life. What else truly matters in life?
Once you start mixing medications, it becomes damn near impossible to know what side effects are from what drug. How do you know what is a "POTS" symptom and not a side effect from the new beta blocker you started taking or the new SSRI you have been put on?
It gets to a point where enough is enough and that is why I am bitter. I am sick of POTS doctors treating POTSy like guinea pigs. I did not sign up for this! There has to be others out there that feel the same way as me. Surely not all of you are brainwashed that we need all of these medications especially when they are NOT working?
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